Name: Adam J. Fleischhacker
Tell me about the person who died:
Miles was my boy. He was exactly sixteen months old when he died. He went to sleep at day care, and basically never woke up. I’m so thankful that his passing was peaceful. He spent about 24 hours on life support but we believe he was already gone. When we turned off the machines, I held his little body in my arms until his heart stopped. It was the most painful thing I’ve ever done, but so very important to me to have done it.
Miles was a joy. My favorite thing to do was to hold him face-to-face while we just shouted with each other. A joyous, life-affirming shout-off. He had crazy good dance moves, the most charming smile, and the brightest eyes you could imagine. Of course he could be a real crab too. He loved his bottles, and demanded them all night long. He didn’t have very many words but he said “Dada.” He was just starting to walk. Miles was a colicky little guy in the first six to eight months or so, and I always believed it was because he wanted to move. He wanted to get up and go, crawl around, explore, do stuff! So when he first started standing on his own and taking steps, he would get this amazing delighted look on his face like “Holy shit, I am walking! Can you believe this?!” It was magical to witness. That was Miles.
Tell me about an object that reminds you of the person who died, and why?
Miles used to stand at the foot of his crib and bite the rail, then shift his weight and rock side to side, sliding his bottom teeth back and forth. He left these nice big scratches in the white finish. People assume it’s sad to talk about your lost loved ones, but I love to talk about Miles. However, one of the things that’s hard about losing him at only sixteen months is that not very many people knew him, so there are fewer opportunities to recollect him with others. What I love about these scratches in the crib rail is that he quite literally left his mark. He really was a guy that wanted to take a bite out of life (distinct from his brother who was more cautious and laid back), and along the way he added some nice texture to his crib rail.
What was your experience of grief like after your loss? How did it change over time?
At first I felt shock and numbness. That sort of became a fog that lasted probably a year. At the same time, I felt mentally clear and focused as far as what needed to be done for our surviving son, Miles’ twin brother Reed. I was open to accepting help, even ready to ask for it, which is normally very difficult for me. I didn’t want to be alone. I was so grateful for the family and friends who descended on us and I was scared for them to leave, so I spaced out the visits from all the people who offered to travel to see us.
Then there was the anger. There was no one to blame but I was (and sometimes still am) just furious at the world. If life were a game, I didn’t want to play anymore. I wanted to quit. Not hurt myself, I wasn’t suicidal. I just didn’t want to do anything or be anywhere. I wanted not to exist. I was tired, and slept a lot. Found it hard to focus or do any kind of work. But slowly I became more and more focused on what I wanted my life to look like moving forward.
If you had to describe your grief as a literal landscape you've been passing through, what would it look like and feel like?
It’s empty and dark. Endless, yet also impossibly confining.
Did anything surprise you about your experience with grief?
I was surprised to be able to communicate and share. I didn’t feel the need to protect others from my grief. The profound darkness was surprising in a way—I guess that I could have the will to continue in the face of such horror was surprising. Also it’s surprising that it can open you up in a way. Open you up to accepting the love that you feel pouring in from others. Open you up to be more patient with your fellow human beings—especially strangers you encounter who might otherwise have frustrated you with bad driving or inconsiderate grocery store etiquette for example.
How did the people in your life support you in your grief? What was helpful? What was frustrating?
Just being there is the number one thing people can do. Be with you. Then of course there’s helping with the logistics and all the administrative BS. People from work were bringing food constantly. That was amazing, the volume of support and the number of people who wanted to pitch in. It was frustrating when people shied away. Or worse, when they tried to bring up their grief as a way to relate. I think my number one pet peeve is anyone who tries to talk about a miscarriage as a way to relate. It’s apples and oranges. I can’t comment on or judge anyone else’s pain, but losing a child that you knew and spent time with who had a personality is much worse than a miscarriage. It just is.
How did people who were grieving the same person respond to the death compared to you? What similarities and differences did you notice?
My wife took it very hard, of course. She spent the first three days or so sleeping almost the entire day. She couldn’t eat at all. She just shut down completely. We were both just devastated obviously. But we were also grateful, right from the beginning, that he did not suffer, that no one missed anything, or was neglectful. That we truly felt nothing could have been done. My parents and siblings were devastated but I didn’t notice much beyond that, I was too consumed by my own grief. I didn’t feel much obligation to notice anything about what they were going through.
How did your private grieving relate to your public mourning?
They were pretty closely linked I think. I probably tried to keep the public mourning more shiny than the private mourning. Show my resolve to go on. Be strong and all that stuff. But I have many close friends that I was very comfortable being open with; and I knew, maybe instinctively, that it would ultimately be good for me and for them if I tried to be as open as possible.
Was there anything about your cultural or religious background that affected the grieving process for you?
Culturally I think we have a completely warped view of death and grief. We try to ignore or bury it. I did that too before this happened. It’s ridiculous. We are all going to the same place, so why do we pretend that something’s gone wrong when someone dies? We all die, we are supposed to die. I’m not saying it’s not tragic, and that loss is not painful. But the idea that life should be free of pain and grief seems to be a cornerstone of our culture; the idea that loss and death are an aberration - it just makes no sense.
Were there any personal or public rituals or structures that helped you in your grief?
We held a super small memorial service with just close family a few days after he died, and it felt essential to set aside that time to gather and commemorate. At the one-year anniversary of his death we travelled to New York and had a memorial with our closest friends, most of whom we had not seen since he died. That was extremely helpful to me. To have everyone come together, acknowledge his life, acknowledge our loss, and have our friends stand by us and say “Your loss is our loss too. We carry this burden with you.” To pass the one-year mark, to face all those people, to accept their support, and to remember Miles in that way, I felt as though I’d been through a portal on my grief journey.
How did your loss and your grief change you?
Losing Miles broke my heart, permanently. But it also broke my heart open. I think I’m more sensitive, more patient. I feel stronger (some of the time – there are still times when I am completely crushed, devastated beyond all reason). I feel more focused. I think the little worries in life bother me less. I’m no longer afraid of death. I want to be around to raise my other son, and there’s a lot of things I’d like to do in this lifetime, but I’ll be glad for the relief from this grief when I shuffle off. And although I don’t believe in heaven or any kind of afterlife that we can possibly understand—maybe I’ll be with Miles again, even if it’s just in oblivion. I guess the simple version of that is: either I’m wrong and there is an afterlife and we’ll be together, or I’m right and I’ll be gone so it won’t really matter.
Adam Fleischhacker is a director, editor, writer and producer of film, television and video. He spent twenty years in New York producing and editing television, making independent films, and creating and hosting a web series for Food Network. He recently returned to his hometown, Cleveland OH, where he continues his work, karaokes with his wife, and plays with his son.